ADANA AKDENIZ ANEMISI (TALASEMI) VE ORAK HUCRE ANEMI HASTALARI KORUMA VE DAYANISMA DERNEGI

popis organizace:

We have established our association on 2007 with Thalassemia patients and their families. The purpose of the association is to fight with thalassemia and cell anemia patients, contribute to the formation of a healthy society, information between national and international organizations to make in consultation and awareness-raising activities. To fight against thalassemia and sickle cell anemia to contribute to the formation of a healthy society structure and to provide unity in meetings and organizations by exchanging information with national and international organizations on these issues to inform and raise awareness. To identify and solve the problems of patients, families and centers working on this issue, to carry out studies to increase the life standards of patients, to provide public education on thalassemia, to set standards in the prevention and treatment of thalassemia and hemoglobinopathies, Cooperation, coordination,
standardization within the framework of total quality understanding, to provide effectiveness and efficiency.We are very motivated to coordinate different projects and evaluate all the opportunities to ensure cooperation between organizations.
Institutions we are a member of
THALASSAEMIA INTERNATIONAL FEDERATION
TURKISH TALASEMI FEDERATION EAST
MEDITERRANEAN CIVIL SOCIETY PLATFORM
ADANA CITY COUNCIL ASSEMBLY FOR THE DISABLED

Volunteering project